This time last year I was in the Michael E. DeBakey VA Medical Center in Houston, Texas. First, let me go back in time to some of the events that may have led to me having duodenal cancer.
May of 2012 was a traumatic time for us, after being evicted from our house in Sulphur, Louisiana. We then moved to DeRidder, Louisiana on July 20 and it took almost two weeks to move our belongings to a trailer. I think the eviction and move took a toll on me emotionally and physically. I truly feel that financial stress played a part, in me acquiring cancer last summer.
I began to lose an alarming number of pounds in July and would have lost 45 pounds by the time I entered the VA Hospital in Houston in October. I vomited 17 times in a two-day period, which contained blood. I went to the VA Hospital in Pineville, Louisiana and they thought at first that I had acid reflux, peptic ulcers, duodenal ulcers and H pylori. I was sent home with various prescriptions that didn’t control the vomiting.
Finally on September 28 of 2012 I was admitted into the VA Hospital in Pineville and the next day September 29 they transported me via ambulance to the VA Hospital in Houston.
One of the first things they did in Houston was insert a tube down my throat and connected it to a container that received the contents of my stomach continuously to prevent any more vomiting. The inserting of the tube was one of the most stressful medical procedures done, while in the hospital and very uncomfortable having a tube, but it did prevent any further vomiting.
It took almost two weeks before the oncologist determined that I had duodenal cancer, after unsuccessful CT scan which was too cloudy because of a recent CT scan at the Pineville VA Hospital. Then the doctors tried an endoscopy, which didn’t work, since it the instrument wasn’t long enough to reach the blockage, which they were trying to biopsy.
The oncologist still could not get a biopsy, so they tried another endoscopy that reached the blockage and then prescribed a Petscan to get a better look at the blockage. After these two procedures they determined that I did have duodenal cancer, a cancer that is in beginning section of small intestines. It is also referred to as adenocarcinoma.
The Petscan was a unique experience. For 45 minutes they started and stopped the scan. I had the sensation of being on a train. The only thing missing was that no conductor was saying “All aboard”.
My birthday was on October 14, which was two days before the surgery. My wife Rhonda had made a Happy Birthday poster for the door of my room and my daughter, her husband and two grandchildren were there to celebrate. My two sons, who had already arrived a few days earlier were also there, along with my ex-wife who came with my daughter.
I still have the poster that Rhonda made in our bedroom and it has a lot of sentimental value. Rhonda had to sleep in a chair the first few days, that I was in the hospital. She found out later there was a place called Fisher House on the grounds, so she could have a place to eat and sleep during the night.
One of my brothers also made two or three visits to the hospital, while I was there and his ex-wife and my niece also made visits to see me.
I will never forget the day of the surgery, which was Tuesday, October 16, 2012. I was rolled into a hall where patients were lined up for surgery. I recall the nurses were asking about a patient who didn’t show up for surgery, because he tired of waiting for the surgery and had left the hospital.
Once I entered the surgery room the anesthesiologist began sticking with me with needles which were very painful and I was surprised how many times I was stuck and awake to feel the pain. I could hear the surgery room nurses make clanging sounds similar to the sounds of pots and pans being put on tables.
The next thing I knew it was 11 hours later and my surgery which was supposed to have taken 5 or 6 hours had lasted 11 hours, because I had been nicked in the liver and it caused massive bleeding, which required four units of blood to replace the lost blood. The surgeon told Rhonda that they were close to losing me, so I am very fortunate to even be writing about the surgery.
I remember being in a very strange room, after the surgery which I assume was the ICU. It seemed like it was very dark in the room and I almost felt like they had sent me to a secluded cabin to recover from the surgery. I still can’t remember much about this phase in my recovery.
One of the results from the surgery was the finding that I had Stage III duodenal cancer. Duodenal cancer is extremely rare and only accounts for 1 percent of gastrointestinal cancers.
At some point before or after the surgery I had a picc line inserted in my arm, so the nurses wouldn’t have to give me so many injections.
However, I still had blood work done every morning at about 5AM. I had insulin shots in my stomach at least once a day, even though I was and am not now diabetic.
One thing I remember is watching the 2012 World Series between the Detroit Tigers and the San Francisco Giants. I tried to watch all of the games, but would sometimes fall asleep during the games.
About a week after the surgery I was finally allowed to eat real food, for the first time since arriving at the hospital three weeks earlier. However, my appetite was not that great and would only eat part of the food most of the time.
It was great to have the tube removed from my throat, even though it was uncomfortable feeling for it to come out. Needless to say I talked differently while having the tube in my throat, so was happy to talk normally again.
It was Halloween night (October 31) when I was finally released from the hospital. The day started off well as I started being readied for release, but I waited a very long time for the Picc line to be removed. The technician came in the room and had me in more of upside down and sideways position, so that he could remove the Picc line.
My high number on the blood pressure reading was 181, when I was finally released late that night. Blood pressure was a serious problem in the hospital, since it spiked to about 220 at one point, so I was given blood pressure medication and wore a blood pressure patch to bring it down.
Immediately after being released I stayed with Rhonda at the Fisher House that night, to prevent traveling immediately after being released.
We made the 160 mile trip back to DeRidder the next day and began the long road to recovery. I was feeling a little better each day and felt much better, when we made a visit to the VA Hospital in Houston in November, to see the oncologist for a checkup. He told us that duodenal cancer has a history of returning, which sort of caught me by surprise.
We drove home on Thanksgiving morning and we were slowed by a massive traffic jam before we arrived at my daughter’s home in Groves, Texas. When we arrived there they told us, that many cars had hit each other in the fog on Interstate 10, so we were fortunate to miss the accident, but were detoured so we never saw the scene of the accident.
I started 91 days of chemotherapy after returning home at the VA Hospital in Pineville. There is no chemotherapy for duodenal cancer, because it is so rare, so was treated as if I had colon cancer.
When I told the doctor I read that there was only a 30 percent chance of surviving duodenal cancer he told me not to worry, since my life expectancy was only 76 since I was a male. I relaxed after that figuring what is two years less or more, since I will be 69 this week.
The chemotherapy had many bad side effects, with sensitive to cold, jaw pain when chewing foods, unsteady on my feet and the oncologist in Pineville switched me to another form of chemotherapy.
It wasn’t much better as it caused another set of problems, so my chemotherapy was stopped 91 days into the 5 month treatments. The oncologist told me my quality of life was being affected too adversely by the chemotherapy. I was relieved to not have to make the weekly trips to Pineville for the chemotherapy treatments and I started feeling better after the treatments stopped with the side effects no longer a problem.
CT Scan in May in Houston
We went to see the oncologist/surgeon at Houston VA Hospital last May. The first day there we underwent another CT scan and did bloodwork. Then the next day we talked to the surgeon and he said everything looked good on the scan and it was clear. However, he said he was concerned that when he lifted the cancerous blockage off the liver, that some cancer may have seeped into the liver and may sprout up at a later date.
Our next CT scan is scheduled on December 11. Hopefully, the scan will be clear and if not will know it is God’s will being done, so not overly worried about the results.
I want to thank all the doctors and nurses at VA Hospital in Pineville and Houston for their excellent care. I want to thank all the family members and friends who visited me at the hospital in Houston and those who stayed with me in the hospital, after Rhonda began staying at the Fisher House.
I would like to also thank those who called my room during my stay in Houston. Those phone calls meant more to me, than you will ever know.
In addition I would like to think those who sent gift cards or checks, to help pay for Rhonda’s food and expenses, plus help pay our bills, while staying in Houston.
Plus I would like to thank those who contributed to the cancer fund my son started, in conjunction with his bicycle tour starting this week in Kansas City, Missouri.
My goal is to keep a positive attitude regardless of what the results of the scan show, in December and to continue to sing and praise the Lord.